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Category: Awareness

Another busy day

By Shannon Posted on November 21, 2019 Posted in Awareness, Tourettes No Comments

My day started out early today since I had a 4:30 am class. This means I woke up a little before 4 am to prepare and be ready for my first class. Often I am able to go back to …

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More storms

By Shannon Posted on April 8, 2019 Posted in Medical journey, RV family life No Comments

We made it back to the Omaha area after some more repairs on the RV. Starting to sound like a broken record. The RV wouldn’t start for us. My brother, the mechanic, said there was a bad ground. He also …

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New pcp

By Shannon Posted on April 1, 2019 Posted in Awareness, Medical journey, Uncategorized No Comments

Checked out a new PCp today. I think we have a keeper.  She claims that she is not an expert on EDS, but I think she is as much of an expert as one can be for such a multifaceted …

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A Ride with Security

By Shannon Posted on March 24, 2019 Posted in Ehlers Danos, Medical journey, P.O.T.S. Dysautonomia, RV family life No Comments

Our day started out pretty typical.  I taught a couple of classes in the morning. Then I tried to get a little sleep, but that didn’t work so I got back up and drove us to Shaynen’s doctor appointment.  The …

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Worn out

By Shannon Posted on March 22, 2019 Posted in Homeschool, Medical journey, RV family life No Comments

The boys and I wore ourselves out today, but in a good way. My day started with classes at 6 a.m. (teaching English to kids in China). Then we checked out a playground and the boys went fishing for awhile.  …

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Flooding

By Shannon Posted on March 20, 2019 Posted in Medical journey No Comments

I am so saddened by the record breaking flooding that is going on in my home state and our neighboring states.  Levees have broken. Bridges have been washed away.  One dam failed and was destroyed sending proper flooding from their …

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Family time and the big sale

By Shannon Posted on March 17, 2019 Posted in Awareness, RV family life No Comments

  Today was the annual fireman’s Coinnsignment sale in my hometown in Southeast Nebraska. I did a very good job at the sale this year, I didn’t buy a single thing. That is really hard feet to do because there …

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Celebration time

By Shannon Posted on March 1, 2019 Posted in Awareness, Medical journey No Comments

Celebration time this morning. I was finally able to use both hands to wash my hair.  This is the first time since I broke my elbow in December.  My orthopedic surgeon said that it is ok now to move my …

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New allergist, Dr. Shakir

By Shannon Posted on February 28, 2019 Posted in Awareness, MCAD Mast Cell Activation Disorder, Medical journey No Comments

  We saw a new allergy and asthma specialists this week. Dr. Shakir at Midwest allergy and asthma was fantastic. Dr. Shakir will be following Shaynen for his asthma.  His asthma is generally well controlled and rarely flairs, but when …

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New GI

By Shannon Posted on February 23, 2019 Posted in Awareness, Ehlers Danos, Medical journey, P.O.T.S. Dysautonomia No Comments

We have been working to find a good doctor for each of the boys for each body system they need a specialist in. I had a very strong feeling I would like his office just from the call to schedule …

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